Lyme Aware

Category Archives: In the Lymelight Blogs

New York: Pamela Weintraub

Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ Pamela Weintraub

pam-weintraubPamela Weintraub, author of “Cure Unknown” and Executive Director at Discover, is well-known in the Lyme Community. She is an author and journalist. Her lists of accomplishments include Senior Editor at Discover magazine, editor in chief at OMNI, over 25 years covering science and biomedicine, and consulting editor at Psychology Today. She became involved being a strong advocate for Lyme Disease when her entire family began having vague headaches, fatigue and joint pains. As years passed, her eldest son became very ill and was unable to go to school with it came many misdiagnoses after years searching for answers.

In her search for answers, she would ask about Lyme Disease, is it possible? This was often discounted. Once her son tested positive for Lyme Disease, antibiotic treatment began and he finally began to improve and feel well. Not only did her son become very ill, she, as well as her husband’s health began to decline. Their symptoms increased and intensified, she developed dysphagia, radio neuropathy, sensitivity to light and relentless headaches. Her husband, a journalist as well and avid tennis player, began having difficulty reading, writing, and stumbling for words as well as bumping into walls. Her other son began sleeping endlessly.

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New York: Empire State Lyme Disease Association

ESLDALogo

Empire State Lyme Disease Association

Within these groups across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.


“In the Lymelight” ~ Empire State Lyme Disease Association

“Empire State Lyme Disease Association, Inc. is a non-for-profit 501(c)3 organization incorporated in New York State.

Our mission is advocacy, education of the public, education of health care professionals and Lyme and associated disease research. Empire State is based in Manorville, NY and is active in local, state, and national issues. There is a desperate need for public awareness of tick-borne illnesses.

Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis and by promoting a quality of health care that needs to be provided to patients with both early and chronic tick-borne diseases.

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Ohio: Judy Coleman

judy-coleman-1Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference

“In the Lymelight” ~Judy Coleman

Judy Coleman is a native to Ohio. She is an entrepreneur, author, and supporter. Her passion for writing began at a very early age and the author of the Grouchy the Bear and Timmy and the Tick.

Both these books are great in teaching children: Grouchy the Bear teaches them “to get along with and respect others, to accept themselves, and to appreciate life” and Timmy and the Tick in learning to enjoy the outdoors but be careful at the same time. “She lives with her husband on a farm in Belmont County, Ohio, where they own and operate a farm equipment sales business. Weekends often find Judy playing bass fiddle with the family bluegrass and gospel band, along with her husband, their son and daughter, and other family members.”

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Connecticut: Joseph J. Bradley

index--element5Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference

“In the Lymelight” ~Joseph J. Bradley

Joseph Bradley is an author of thrillers, a former police officer, U.S. army veteran, a former martial arts fighter, and former martial arts trainer known for creating the Tao Senti style. He was also featured for his light heavyweight fighter title in New England’s Karate Illustrated magazine. His experience also includes a master’s in criminology and information technology.

While I sat and spoke with him, it became clear to me that he was a family man and his experience with Lyme Disease had a lasting effect. “This disease is the absolute worst thing that has ever happened to me and I feel for the millions of people out there that are suffering and dying every day. This is why I decided to write, The Lyme Conspiracy.” Joseph Bradley has been undergoing treatment for about five and a half years and is doing much better.

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California: Jordan Fisher Smith

JordanFisher22011Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference

“In the Lymelight” ~ Jordan Fisher Smith

Jordan Fisher Smith is a nationally-known writer, former park ranger, outdoor adventurer and a cast member and narrator in the award-winning documentary on Lyme disease, Under Our Skin. He has spoken out eloquently in print, film, and personal appearances for medical freedom and better care for victims of tick-borne illness. Jordan’s articles have appeared in the Discover, Los Angeles Times Magazine, Backpacker, Men’s Journal and other publications. He is the author of Nature Noir, a Booksense Bestseller and Audubon Editor’s Choice now out in paperback and an Amazon Kindle e-book.

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Ohio: Janet DeCesare

JanetDeCesareWithin these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ Janet DeCesare

Janet DeCesare is a dedicated wife, mother, grandmother, friend, sister, daughter, go-getter, fighter, and author. You can definitely feel that family, friends and planting roots are very important to her. She has used her experience in dealing with her battle with chronic Lyme Disease as a stepping stone and learning tool by publishing her story in “Ticked Off.” “She used her memoirs to help those that need answers and support in their own current battles. Whether you are suffering with Lyme disease or only know someone who is, find hope and a voice amid the silence as Janet searches for answers to her own decaying health.”

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Montana: Andrew Peterson

AndrewPetersonMT2011Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ Andrew Peterson

Andrew is a son, father, husband, author, composer, musician, psychotherapist, blogger, and entrepreneur. He currently has a Blog called The Next Ten Minutes – everyday mindfulness where his blogs are based upon his experience and “explorations of many subjects which emanate from these disciplines”. In addition, he is “blogging about mindfulness, music, masculinity and many other subjects”. Andrew’s hopes are that you will feel it is worth your time to read the various posts that he has written with a “common thread … an effort to approach our everyday experience with an attitude of mindful acceptance.” He is the author of the book, The Next Ten Minutes: 51 Absurdly Simple Ways to Seize the Moment.

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Maryland: Got Lyme?

GotLymeBarbaraWithin these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ Barbara – Got Lyme?

Barbara is a wife, daughter, grandmother, advocate, fighter, friend, and confidante. She loves to help others, loves her family and has a strong faith. “My faith in God and my family are the most important things in my life.” She strives to bring awareness of Lyme Disease and co-infections as well as to show understanding and support to others. She also dedicates a lot of her time supporting others through on-line and person to person support groups. She is a godsend to many. “Remember, you are never alone in the fight against Lyme!”

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Oregon Lyme Disease Network

Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ Oregon Lyme Disease Network

Oregon Lyme Disease Network is a 501(3)c non profiit organization. All of our organization is 100% volunteer, from our president/ceo, to our support leaders and to all the wonderful other volunteers. We can always use more help, either helping with a fundraiser, helping fill in for support leaders, handing out information at Saturday markets, or just being there for someone who may be experiencing the same pain, fears, concerns as you have gone through. If you would like to volunteer, Please let us know.

You may contact The Oregon Lyme Disease Network at 541-312-3081.

Lyme-Aware is an independent organization and has no affiliation with this organization or individual.

See DISCLAIMER

 

 

New Mexico: Lyme Disease Support Group

AwarenessLymeBraceletCWithin these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ New Mexico Lyme Disease Support Group

Diane is a daughter, sister, friend, advocate, victim, leader and activist. After two and half years of heavy antibiotic treatment, she has been able to recover to almost 90 percent. She is still improving. She overcame some major obstacles throughout her battle with Lyme Disease. Despite having a roof over her head, she was deemed by some as a “homeless veteran”. Her story was featured in “It’s All In Your Head-Around the Word in 80 Lyme Patient Stories” written by PJ Langhoff. She also began a support group in New Mexico. “I started a Lyme state group, New Mexico Lyme Disease Support, from the homeless place …” The New Mexico Lyme Support Group which she is the leader of has close to 140 members.

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