Lyme Aware

Category Archives: Lydia’s Journey

My Introduction to Lyme Disease

I Will Beat These Beasts: Part 1

40 percentThe Beginning:

After a gorgeous day of picnicking and canoeing, I discovered a tick buried in my shoulder. Who knew that this small insect would change my life? I went to the ER and was given 10 days of Doxycycline just to be cautious. A couple days later, I had the Bull’s Eye rash, mild headaches, minor flu-like symptoms, and a stiff neck. The standard regimen seemed to help because I felt better.
A couple weeks later, I began getting stiff knees. Besides my stiffness, I was experiencing headaches, hot flashes, chills, stiffness, and fatigue. I asked for another treatment of antibiotics and was refused, not only by one doctor, but many. The Western Blot and Elisa tests were defined as negative, only 3/5 bands positive with others described as IND. Despite the tick, all the early clinical symptoms and some positive bands, the doctors refused to think Lyme was to blame. It had to be something else.

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Grief Does Not do a Body Good

Beautiful Things Quote

Grief Does Not do a Body Good

When you heard from me last, I was feeling at a loss with my mother’s struggle with Dementia/Alzheimer’s and its effects on her. In January another angel was called to heaven. (Mom, I will miss you dearly.)

Grief has a great effect on your health, last July I was grieving for the loss of the mother that I had always known. It began to take its toll then, but I was able to recoup quickly. I owe my strength to deal with anything that comes my way from my mother and father. My mother was one of the strongest people I have ever known. At that time, I was preparing myself for the worst. All the preparation in the world doesn’t take away the heartbreak of losing someone.

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Small Detour in The Highway of Life

“Life is like a highway, no matter what they say, the construction is never finished. There’s always gonna be bumps in the road and detours every now and then.”

~Nishan PanwarHighwayBW

Small Detour in The Highway of Life

Just the other day, I was perusing through the Facebook statuses and saw one asking if Lyme is cured or just placed into remission. My thought is that for some it can be cured, it all depends on the person’s body makeup and genetics.

They are finding now that if certain genes are evident and found in your body, your predisposition for certain Cancers place you at higher risk. I read that if certain factors are present, for example, the conditions surrounding you and your health, you will indeed come diagnosed with Cancer. So many things come into play, your immune system, your daily stress levels, genetics, sickness, and environmental conditions–the whole gene and development concept.

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An Eleven Mile Hike for Lyme Warriors!

1-Stanton Park 6 2013-7An Eleven Mile Hike for Lyme Warriors!

If anyone would have told me that I was going to hike eleven miles, I would have said “Get Out!” Quite frankly, I would have never imagined my being able to do so about four years ago. Much less about eleven years ago when I couldn’t even bathe or clothe myself, what you’d call walking was a few feet of shuffling across the floor and pulling myself up to sit down.

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Candy Apple Red Blood: Ozonation & UV Blood Irradiation

AppleCandy Apple Red Blood

In maintaining my health, I have learned and experimented many different avenues. This time I will share my experience with ozonating or ozone blood treatment or cleansing; yet, another new technique for me and thinking/stepping outside the box.  And outside my comfort zone.

It is defined in Wikipedia as “Ozone therapy”- “the introduction of ozone into the body via various methods, usually involving mixing of the ozone with various gases and liquids and injecting this into the body.” Injections can be given under the skin, in a muscle or through an opening. Ozone can be introduced into the body is several different ways. Some use Ozone saunas. The other ways include blood cleaning, injections, water, insufflation and body bags.

Of course, as with any treatment that you normally don’t see in the mainstream it comes with controversy and caution. “There is” even “some controversy about its use by athletes in an attempt to increase performance.”

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Mercury Detoxification Protocol, DMPS Injections or KPU?

Mercury Detoxification Protocol, DMPS Injections or KPU? 

Unlike many others, I have been doing very well. Some people ask: Do I do anything? Am I still using treatment? And what did you do to get well?scream

The thing is. It is not like most of you want to think. You undergo the treatment by taking the prescribed antibiotics or herbal protocols, you’re cured! Then you’re done! Well, I can’t speak for everyone, only myself. It is an ongoing daily regimen to remain well. Am I on a strict diet? I wouldn’t call it that. Do I watch what I eat and don’t eat? Of course!

Am I still on antibiotic treatment? No. Do I still use herbals or naturals? Yes. 

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Dinner and a Lesson

WedlsDinner And A Lesson

Alas, a truly real vacation. One that I was able to take the time to enjoy and concentrate on just having fun, yes, it had a purpose but I had fun in the process.  A bit of a continuation from my Blast in the Past blog.

In my quest to find my past, I stumbled upon quite a few that have been touched by Lyme Disease and other tick-borne diseases. One evening, I met my sweetheart and a friend for a bite to eat. It was the place where my younger sister once worked while in high school as a waitress. When I was asked to meet them there, I couldn’t recall where it was, nothing new there. I was a bit nervous but my sweetie was confident once I began driving there I would be able to recall familiar landmarks along the way and arrive safely. (Mind you, I drove my hot rod I thought I’d never be able to drive again due to my Lyme Disease arthritis.)MyHotRod

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Blast to the Past

Success!!  Blast to the Past

Ten years ago, I had no idea that the hot flashes, chills, and fatigue I was experiencing at my class reunion were the beginning of a complete change in my life!   I remember someone giving me a hard time telling me it was menopause…I laughed. As we drove home from our trip, I began having more of a difficult time getting in and out of the car when we stopped for gas. By the time we made it home, I could barely walk and had a whopping headache.ReflectionRainbow

“Stop acting as if life is a rehearsal. Live this day as if it were your last. The past is over and gone. The future is not guaranteed.”

I sit here and write this blog looking back. I decided that I wanted to recapture my past and hopefully remember some of those lost years. During this trip, I took time to visit old places in hopes of sparring some of my past memories. (Lucky I didn’t listen to those doctors that told me to just accept my fate.) The first night at my class reunion, a fellow classmate comes up and asks: “Do you remember me?” I struggled to remember and I just couldn’t. He says: “How can you not remember me, I sat next to you for four years.” I hadn’t a clue. (I even took the time to cram, before we left, with my yearbooks, but nothing came.) Finally, he stated his name.

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The Risks We Take to Become Well

ScaleThe Risks We Take to Become Well

A few months back, I remember reading an article in the New York Times, For Intrigue, Malaria Drug Gets the Prize, it gave a rundown of the history of Artemisinin’s discovery. Since my biggest battle was fighting Babesiosis (Babesia) among Bartonella and Lyme Disease, I was extremely curious as to what it said. It stated that Artemisinin was known best for treating Malaria, but I used this along with a number of drugs that were mentioned in the article.

I found it quite interesting indeed. Why? Because I was warned about Mefloquine a/k/a Lariam. Stay away from it, many said. Didn’t you hear about the Fort Bragg incident? I was surprised to hear that it was discovered back in the 1960’s to help the many military soldiers suffering from Malaria. The drawbacks were serious which included nightmares and paranoia.   I’d have to admit I was quite scared, actually petrified but I was on a quest to get better. I hated the cycle of uncontrollable shaking being freezing cold to completely drenching my clothes and bedding. The chest pains, excruciating 24/7 migraines and then the “air hunger” (you know, how it feels when it is so bitterly cold that you can’t breathe) were no picnic either.

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A New Stage of Discovery: Onward and Upward

airballoonA New Stage of Discovery: Onward and Upward

“Vision looks upward and becomes faith.” ~ Stephen Samuel Wise

In Courage Doesn’t Always Roar, I was caught a bit by surprise at the news I heard. I dare not share the first thought or words that popped in my head. This is a G-rated site after all. (Ha, ha) It was indeed a very minor bump in the road. The whole point is to remain healthy and enjoying life, right. I did what was necessary and the worst I had to deal with was the horrible side effects of the regimen I was on and that was all. It is funny how what happens in your life shapes you in different ways.

“Acceptance of what has happened is the first step to overcoming the consequences of any misfortune.” ~ William James

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