Lyme Aware

Category Archives: Lymelight – New York

Lyme Ninja Radio

LymeNinjaLyme Ninja Radio is a podcast for and about people with Lyme Disease. It’s produced by acupuncturist, Mackay Rippey and his daughter, Aurora. Together they bring you Master Classes with the latest treatment options  as well as interviews with people like you, the Lyme Ninjas who are battling Lyme every day.

New York: Pamela Weintraub

Within these groups of individuals across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

“In the Lymelight” ~ Pamela Weintraub

pam-weintraubPamela Weintraub, author of “Cure Unknown” and Executive Director at Discover, is well-known in the Lyme Community. She is an author and journalist. Her lists of accomplishments include Senior Editor at Discover magazine, editor in chief at OMNI, over 25 years covering science and biomedicine, and consulting editor at Psychology Today. She became involved being a strong advocate for Lyme Disease when her entire family began having vague headaches, fatigue and joint pains. As years passed, her eldest son became very ill and was unable to go to school with it came many misdiagnoses after years searching for answers.

In her search for answers, she would ask about Lyme Disease, is it possible? This was often discounted. Once her son tested positive for Lyme Disease, antibiotic treatment began and he finally began to improve and feel well. Not only did her son become very ill, she, as well as her husband’s health began to decline. Their symptoms increased and intensified, she developed dysphagia, radio neuropathy, sensitivity to light and relentless headaches. Her husband, a journalist as well and avid tennis player, began having difficulty reading, writing, and stumbling for words as well as bumping into walls. Her other son began sleeping endlessly.

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New York: Empire State Lyme Disease Association

ESLDALogo

Empire State Lyme Disease Association

Within these groups across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.


“In the Lymelight” ~ Empire State Lyme Disease Association

“Empire State Lyme Disease Association, Inc. is a non-for-profit 501(c)3 organization incorporated in New York State.

Our mission is advocacy, education of the public, education of health care professionals and Lyme and associated disease research. Empire State is based in Manorville, NY and is active in local, state, and national issues. There is a desperate need for public awareness of tick-borne illnesses.

Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis and by promoting a quality of health care that needs to be provided to patients with both early and chronic tick-borne diseases.

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New York: Research, Laboratories & Medical Centers

New York ~ Research, Laboratories & Medical Centers

Columbia University – Lyme and Tick Borne Disease Research Center

“The Lyme and Tick-borne Diseases Research Center was established as the first academic research center in the country to focus multidisciplinary research on chronic Lyme disease. In recognition that a growing number of patients experience ongoing or relapsing symptoms after having been treated for Lyme disease and in recognition that diagnostic tests are plagued by both false positive and false negative results and rarely provide definitive information about the presence or absence of active infection, the mission of this center is to focus research on identifying better diagnostic assays, better treatments, and a better pathophysiologic understanding of the mechanisms of symptom persistence so as to enable the development of more effective treatments…”

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New York Lyme Disease Support Groups

NewYorkWithin these groups across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

New York ~ New York Lyme Disease Support Groups

A Hope 4 Lyme – Support Meetings

The group meetings are usually held at Big Flats Community Center (Room C), 476 Maple Street, Big Flats, NY 14814. This is free and open to anyone suffering from Lyme or other tick-borne diseases, caregivers, children, friends & family who have questions and/or are looking for answers. Contact them for more details at their website at www.ahope4lyme.org. By mail at A Hope 4 Lyme, Inc., PO Box 1003, Elmira, NY 14902-1003 or by email at ahope4lyme@yahoo.com.

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