Chronic Lyme: There is a story in this. You haven’t told it.

My Lyme disease is not the IDSA Lyme disease – Movement

Chronic lyme sufferers around the country are fighting back against damaging public and mainstream medical opinion that chronic lyme disease does not exist, as reported recently in the Chicago Tribune’s article “Chronic Lyme disease: A dubious diagnosis.” These long-term Lyme patients are using the two things they still have – their voices and their stories – in solidarity, publishing essays entitled “My Lyme disease is not the IDSA Lyme disease” as a rebuttal to this article, in blogs all over the Internet. Below you’ll find H’s story. She wishes to remain anonymous to protect her family, who have since come a long way in supporting her in her Lyme journey. Read more.

Others Join in with Their Responses:

Journalism or Sensationalism? Compilation of Lyme Patients/Advocates Response to Tribune http://bit.ly/hL4ala

Letter to Editor Chicago Tribune–Chronic Lyme Dubious Diagnosis http://bit.ly/hCM5lA

L.E.A.P. Arizona: Response to December 2010 Chicago Tribune Article http://www.leaparizona.com/

Response to Chicago Tribune’s Misinformation Attempts, “fails to educate herself in the actual science or history of what she writes about” http://bit.ly/egAQdq

Honoring Those Great Doctors – LLMD’s http://bit.ly/e76AuO

Chronic Lyme disease: A dubious diagnosis http://www.chicagotribune.com/health/ct-met-chronic-lyme-disease-20101207,0,5671843.story?page=4

Rebuttals: