New York Lyme Disease Support Groups

Within these groups across the United States and other countries, there are fathers, mothers, brothers, sisters, sons, daughters and so forth. As Dr. Jemsek states, “sooner or later” your family will be affected by this growing disease and you, too, will be trying to make a difference.

New York ~ New York Lyme Disease Support Groups

A Hope 4 Lyme – Support Meetings

The group meetings are usually held at Big Flats Community Center (Room C), 476 Maple Street, Big Flats, NY 14814. This is free and open to anyone suffering from Lyme or other tick-borne diseases, caregivers, children, friends & family who have questions and/or are looking for answers. Contact them for more details at their website at www.ahope4lyme.org. By mail at A Hope 4 Lyme, Inc., PO Box 1003, Elmira, NY 14902-1003 or by email at ahope4lyme@yahoo.com.

Adirondack Lyme Disease Foundation

(Empire State Lyme Disease Association, Inc.) You may contact them by email at lmcallister@nycap.rr.com.  Or go to their website at www.adirondacklymediseasefoundation.com.

The group meetings are held at the Saratoga Springs Public Library, 49 Henry Street, Saratoga Springs, NY in the Susman room, located on the lower level, from 7-8:30 PM. Contact them for more details.

Capital Region Branch Guilderland, New York

(Empire State Lyme Disease Association, Inc.) If you would like to be added to the mailing list to be notified of future events, or for further information, contact felicite44@aol.com.

The group meetings are held at Guilderland Public Library, 2228 Western Avenue, Guilderland, NY 12084.   Contact them for details.

Chronic Disease Support Group

(Empire State Lyme Disease Association, Inc.) You may contact them at 631-905-2398.

The group meetings are held at St. Charles Hospital in Port Jefferson, NY. Contact them for more details.

CNY Lyme Support Group

The group meetings are held the first Sunday of every month at the Sullivan Free Library in Chittenango at 2-3:30pm.

East Islip, NY

(Empire State Lyme Disease Association, Inc.)  You may contact them at 631-878-6657 or 631-650-5483 or by email at EmpireStateLyme@aol.com or Blyjan@Yahoo.com.

The group meetings are held on the fourth Saturday of Every Month at the East Islip Public Library 381 East Main Street East Islip, NY 11730. Contact them for more details.

Fingerlakes Region, Rochester Lyme Disease Support Group

(Empire State Lyme Disease Association, Inc.) You may contact them at 585-924-3558 or by email at Fingerlakeslymegroup@yahoo.com or EmpireStateLyme@aol.com.

The group meetings are held on the third Sunday of every month at the Farmington Town Hall, 1000 County Road 8, Farmington NY 14425 from 2:00 to 4:00 PM. Contact them for more details.

Finger Lakes Lyme

You may contact Joanne Button by email at upstatelyme@gmail.com for more information and details.

Green County Lyme Help

You may contact Mark MacNiven by email at freaky_minis@yahoo.com for more information and details in the Earlton area.

Great Neck, NY: North Shore Lyme Disease Support Group

(Empire State Lyme Disease Association, Inc.)   You may contact them at 631-878-6657 or by email at NorthShoreLyme@gmail.com.

The group meetings are held at All Saints Episcopal Church – Ground floor conference room, 855 Middle Neck Rd., Great Neck, NY 11024. Contact them for more details.

Hampton Bays, NY

(Empire State Lyme Disease Association, Inc.) You may contact them at 631-878-6657 or by email at EmpireStateLyme@aol.com.

The group meetings are held at the Hampton Bays Public Library, 52 Ponquogue Ave, Hampton Bays. Contact them for more details.

Huntington, NY

(Empire State Lyme Disease Association, Inc.) You may contact them at 631-878-6657 or by email at EmpireStateLyme@aol.com.

The group meetings are held at Huntington Library, 338 Main Street Huntington, NY. Contact them for more details.

Ithaca Lyme Disease Meetup Group

You may contact Linda by email at Lpayne4@twcny.rr.com for more information and details.

L_I_L_A · LONG ISLAND LYME ALLIANCE

An online support group, you may go to their website at http://health.groups.yahoo.com/group/L_I_L_A/.

Lyme Borrelia Out-Reach Foundation Inc.

You may contact Stephen J. Nostrom RNC by email at Borrelias@aol.com for more information and details.

Lyme Disease On Line

An online support group whose website address is http://www.angelfire.com/ny/lymedisease/mattersmain.html.

Lyme in Orange

You may contact Mike Kleinman by email at mikekleinman@gmail.com.

The group meetings are held the fourth Monday of each month at 1st Presbyterian Church, 33 Park Place, Goshen, NY 10924 at 7pm. Contact him for more details.

Manorville, NY

(Empire- State Lyme Disease Association, Inc.) You may contact them at 631-878-6657 or by email at EmpireStateLyme@aol.com. Contact them for more details.

Mid-Hudson Lyme Disease Support Group

You may contact Rachel at 945-229-8925 or by email at Benagum@aol.com or Pat at 845-889-4242.

The group meetings are held at the Pleasant Valley Presbyterian Church, 1576 Main St., Pleasant Valley, NY 12569 at 7:30 p.m. Contact them for more details.

New York

You may contact Christina Roy by email at itsybitsybetsie@aol.com.

New York City Lyme Disease Support Group

You may contact Ellen Lubarsky by email at ellenluba@yahoo.com. Their group website address is www.nyclymesupport.org.

Group meetings are held on the Second Wednesday and the 4th Monday of each month. (Note the 4th Monday is not always the last Monday of the month.) At the Phillips Ambulatory Care Center of Beth Israel, 10 Union Square East btw 14th & 15th St., 2nd floor Conference Center (New York City area) at 6:30 to 8:30 p.m. Contact them for more details.

Northern Dutchess Lyme Disease Support Group

You may contact Mary Belliveau, RN by email at Mary@acadiahr.com

The group meetings are held the second Thursday of every month at the First Baptist Church, 11 Astor Drive, Rhinebeck, NY at 7:30 p.m. Contact her for more details.

NYPenn Lyme Disease Support Group

You may contact Linda Wales by email at jalmwales@npacc.net.

Group meetings are held on the second Monday of every month at 7pm. Contact her for more details.

Oneonta-Cooperstown Chapter Lyme Disease Support Group

(Empire State Lyme Disease Association) You may contact Bob Tuthill at 607-278-4049 or by email at btut42@yahoo.com.

The group meetings will be conducted in the Education Wing, Classroom C of the FoxCare Center 1 Foxcare Road (State Route 7) in Oneonta. Contact them directly for more details.

Onondaga Hill, NY Central New York Chapter

(Empire State Lyme Disease Association, Inc.) You may contact Kristin at 315-200-6541 or by email at LymeCNY@gmail.com.

The group meetings are held in the Community room of the Onondaga Free Library in Onondaga Hill.

Ulster County Lyme Support Group

You may contact March Gallagher by email at catskillmamala@yahoo.com.

The group meetings are held on the fourth Wednesday of each monthpm at the Hudson Valley Sudbury School, 84 Zena Rd., Kingston, at 6:30 p.m.

Vision for Lyme Encouragement Group

The group meetings are held on the second Wednesday of every month at Bethlehem Community Church, 201 Elm Avenue, Delmar. We try to start promptly at 6:30 p.m. and at 7:45 p.m. Contact them for more details.

York Lyme Disease Support Group

You may also contact Gaill Sheffer by email at gsheffer@ptd.net. You may also contact them at their website www.yorkpalyme.org.

Meetings are held monthly on the third Sunday from 3-5 PM at the Country Meadows Retirement Community (Shiloh), located at 1900 Trolley Road, York, PA 17408. The group meets in the Dining Room of the building.

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