Send Your Letters Deadline is April 8th
Dear fellow Lyme patient and Lyme patient advocates,
I know you have received earlier copies of this. If you haven’t yet sent your letters, this is an update that is more clearly understood and includes a sample letter for your US Senator or US Congressperson to use and a pdf file you can send to them.
As you know, the IDSA is preparing to hand down their new guidelines for Lyme disease and a major concern is that the IDSA may not consider all the scientific evidence and all the patients’ claims while in the process of revising their (previous) guidelines.
Alas, a true vacation. One that I was able to take the time to enjoy and concentrate on just having fun. Yes, it had a purpose, but I had fun in the process. This blurb is a bit of a continuation of my Blast in the Past blog.
In my quest to find my past, I stumbled upon quite a few that were touched by Lyme Disease and other tick-borne diseases. One evening, I met my sweetheart and a friend for a bite to eat. It was the place where my younger sister once worked while in high school as a waitress. When I was asked to meet them there, I couldn’t recall where it was, nothing new there. I was a bit nervous. My sweetie was confident once I began driving there I would be able to remember familiar landmarks along the way and arrive safely. (Mind you, I drove my hot rod I thought I’d never been able to drive again due to my Lyme Disease arthritis.)
“The truth of the matter is that you always know the right thing to do. The hard part is doing it.” ~ General Norman Schwarzkopf
Courage Doesn’t Always Roar
Many of you are extremely ill and essentially have lost your lives, your families, friends, and livelihood. Your life, as you knew it, has been destroyed, worst of all, many have lost their hope and faith. Or, you are still mourning your life and the person that you used to be. That is why I was so torn and confused with what I am about to share with you.
On the one hand, I didn’t want to shatter your hope. I even thought that was it was for the greater good that I didn’t share this bit of news. But then, my feelings, as my younger sister so eloquently stated, is I do believe in miracles and that you can be cured and regain your life.
“With Great Power Comes Great Responsibility”
This last week with the coming of the New Year, I have been reflecting a lot of my life, life in general, and those that are battling their own health crisis issues. There are many serious health issues out there, such as heart disease, cancer, diabetes, bulimia/anorexia and so many more that many of you have never heard of, but, they all hold one thing in common. They each cause you to look at your entire life differently.
Dead Tired? Bearly Functioning? More on Adrenal Fatigue
In Dead Tired – Burnt Out – Falling Asleep? Why? I covered some symptoms of adrenal fatigue here’s a recap of which I may have already mentioned and others that I may have not, symptoms of Adrenal Fatigue:
- Waking up in the mid-portion of the night
- Unable to fall asleep
- Increased susceptibility to infections
- Midday Fatigue
- Reduced tolerance for stress
- Craving for sweets and salty foods
- Allergies to things you were never allergic to before
- Chemical sensitivities
- A tendency to feel cold (many people and doctors think they have hypothyroidism).
Dead Tired – Burnt Out – Falling Asleep.
Adrenal Fatigue or Lyme?
Since my horrific experience with Lyme and Babesia, I have been a major advocate of being proactive in your health. This includes listening to your body and following those signals that it sends out. It also includes thinking outside the box; also, following the less-travelled roads, unlike many in the medical community frown upon, which I attribute to how well, I have been.
Lately, it seems that I have been dead tired for no reason, having trouble getting up in the morning, just feeling run down and dragging throughout the day, and just simply too tired to do anything.
There is one major obstacle that I have yet been able to conquer…I’m at a bit of a loss
The Stigma of Lyme
Lately, I have been recalling memories and skills that I had thought I lost forever. It was both wonderful and alarmingly frightening. The worst memories were those that appeared in my dreams when I was in the hospital enduring tests after tests with no answers. When I heard Joy’s testimony last month, it was as if I was there in that very room, what really hit home was when she said she was “all but dissected”; I recalled the moment when I realized that I was lucky I walked away from that surgical table alive but it was a very close call.
For years now, there have been many heated debates over Lyme Disease and its effects on psychological behaviors or whether there is any affect at all even despite evidence that has been presented. Pamela Weintraub has posted several articles regarding this very issue. Dr. Robert Bransfield has also conducted research on the psychiatric manifestations of Lyme Disease and has had over 200 “peer-reviewed articles describe the causal association between Lyme/tick-borne diseases and mental symptom pathophysiology, morbidity and mortality.”
I am not an expert but what I read the other day; I’d say I would have to agree with Dr. Bransfield and Ms. Weintraub. Lyme Disease can cause erratic behavior especially after discovering an old lost journal of a time that I had long put behind me.
Why You May Want to Add Turmeric to Your Diet!
Ayurveda means “the complete knowledge for long life.” In India, ayurvedic medicine is used a traditional medicine and turmeric has been in use for over 2500 years there. Also, I remember that in my life, I have known and worked with many from India and the other countries that use Turmeric for several medicinal purposes and long life. Many of them seem to have been quite healthy and happy.
Dr. Andrew Weil, M.D. in his blog also addresses the benefits of turmeric in your diet. He was also instrumental in Dr. Zhang writing his book, Lyme Disease and Modern Chinese Medicine, and Dr. Zhang has very high respect for Dr. Weil. Those of you that are familiar with me, I have nothing but the utmost respect for Dr. Zhang and his Lyme protocol. Also, as one that was unable to take many of the conventional anti-inflammatory or pain medicines, I felt it was important to search for other remedies that may supply some relief. There are many others that also rave of the benefits of turmeric.
Thank you for being with me through this roller coaster of my life.
This little blurb is for those that are on the other side of this horrendous Disease. Last night as I sat and watched my husband in obvious discomfort, I experienced several different emotions. I went from fear to helplessness to anger to shame to worry to annoyance to relief to concern to fretting; the cycle kept repeating itself.
Then, I thought how difficult it must be for those that go every day observing the list of symptoms you go through, at times, every minute to every hour of the day. How angry and helpless they must feel. Just sitting back and not being able to do anything to help you. Then, when you are in the Emergency Room and trying to explain what is going on with your loved one and not being heard. While you are asking questions or adding to what your loved one has said, it is as if you are not there, totally ignored. For those that have not made a trip to the ER, great for you! However, for those that have whether it was for your wife, children, parents, etc. know what I am speaking about-it’s as if it’s just a one-way discussion.